UNIGHT
Discuss. Share. Connect.
Join us Monday, February 26 via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion with Kimberly McCleary from the Kith Collective to discuss “Illuminate Hypersomnia: Shining Light on the Lived Experience of Idiopathic Hypersomnia.”
Registration is FREE! Zoom link will be sent via email after registration.
ABOUT OUR SPEAKER - KIMBERLY MCCLEARY
Kim has been at the forefront of patient engagement for more than 30 years. She is a nationally regarded subject matter expert on patient-focused medical product development, patient-centered benefit-risk assessment, and organizational change. Kim has authored scores of publications, served on dozens of steering committees and advisory boards, is a sought-after speaker, and has an extensive network of leadership contacts. Her passion for this work is rooted in personal experience, lived as a patient and as a family caregiver.
In early 2018, Kim founded The Kith Collective. Prior to this, Kim was managing director of FasterCures, a center of the Milken Institute, where she led the Patients Count program for five years and also served as interim executive director. For 22 years she was CEO of a national patient organization, the CFIDS Association of America (now the Solve ME/CFS Initiative), leading patient engagement, research, public policy, and development for the myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) community. ME/CFS was the first topic selected by FDA for meeting under the patient-focused drug development (PFDD) initiative begun under PDUFA-V in 2013.
ABOUT THE KITH COLLECTIVE
To speed adoption of patient-centricity by life science companies, not-for-profit organizations, and academic research teams, The Kith Collective was established as a professional services consulting firm to serve corporate and not-for-profit clients. We work with teams and communities of all sizes that are focused on various (rare and prevalent) disease states/therapeutic areas, at different stages of maturity in their organizational lifecycle, and with varying degrees of familiarity with patient-centricity and patient-focused medical product development.
We hope you’ll join us for the February 26th UNIGHT meeting for a lively and informative discussion with Kimberly McCleary. UNIGHT is a great opportunity for everyone to discuss, share, connect and just be ourselves.
Registration is FREE!
Zoom link will be sent via email after registration.
Questions? Email info@hypersomniafoundation.org
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Please note: Our UNIGHT virtual forum is educational and supportive in nature and will offer self-care strategies to help you in your daily life. However, the group will not engage in rendering any psychological or healthcare advice for any particular individual or situation, and will not provide medical, mental health, or any other type of health-related service. No diagnosis, treatment recommendations, medication advice, or any other type of medical or mental health recommendations will be offered. Our support group is not a substitute for, or alternative to, treatment by a licensed medical professional. Always seek the advice of your own physician or another qualified health provider with any questions you may have regarding your medical condition. The Hypersomnia Foundation does not recommend or endorse any specific tests, physicians, lawyers, legal advisers, products, medications, procedures, opinions, or other information that may be referenced on its website or during any online support groups. UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.
